CLINICAL TRIALS, AND MEDICATIONS

TODAY I WAS WONDERING HOW MANY OF YOU CAREGIVERS HAVE CHECKED INTO DOING A CLINICAL TRIAL WITH YOUR PATIENT.  THERE HAVE BEEN MANY ADVANCES IN THE STUDY OF THIS VERY DEBILITATING DISEASE, AND CLINICAL STUDIES ARE AT THE FOREFRONT, AND ARE ALMOST ALWAYS BEING CONDUCTED.  MIKE HAS BEEN IN AT LEAST TWO OF THEM, BUT SADLY, NOW HE NO LONGER QUALIFIES FOR MANY BECAUSE HE HAS NOT BEEN CANCER FREE FOR AT LEAST FIVE YEARS. I WOULD LIKE TO OFFER YOU TWO PHONE NUMBERS NOW THAT YOU CAN CALL AND SEE IF YOUR PATIENT WOULD QUALIFY. FIRST IS FOR THE GAP STUDY WHICH IS DONE INTRAVENOUSLY. IT WILL REQUIRE THREE TRIPS TO MIAMI AT TWO WEEK INTERVALS, BUT THEN IN MOST CASES THEY CAN COME TO YOUR HOME TO ADMINISTER THE TREATMENT.  IT IS A TWO YEAR STUDY-THE NUMBER IS (305) 674-2424 OR 1 858-622-5827. NEXT IS A LOCAL ORLANDO (MAITLAND) COMPANY, THAT MIKE HAS DONE AT LEAST TWO STUDIES WITH.  THEY CURRENTLY DO NOT HAVE ANY STUDIES GOING ON, BUT SAID THEY EXPECT TO HAVE VERY SOON. HERE IS THEIR NUMBER-FLORIDA CLINICAL RESEARCH CENTER (407) 644-1165. I CONTINUE LOOKING INTO STUDIES FOR MIKE, AS YOU NEVER KNOW WHICH ONE MIGHT DO THE TRICK, AND MAKE SOME POSITIVE CHANGES IN HIS CONDITION. ALSO NOT TO BE NEGLECTED, ARE THE MEDICINES NOW AVAILABLE. ACTUALLY I FOUND OUT (FROM MIKE'S CLINICAL STUDY) THAT THE DOSAGE OF ARICEPT HE HAD BEEN ON WAS JUST RAISED AND APPROVED AT OVER TWICE THE DOSE LEVEL HE WAS ON TO 23MG (HE HAD BEEN ON A 10 MG. DOSE BEFORE). SO AS I'VE SAID BEFORE, NEVER GIVE UP, KEEP LOOKING AT NEW IDEAS AND TREATMENT POSSIBILITIES THAT CAN GIVE OUR LOVED ONE MORE TIME WITH US, AND ALLOW THEM TO HOLD ON TO THEIR MEMORIES, A LITTLE BIT LONGER. JUST ME