BACK TO SQUARE ONE WITH HOSPICE!!

WE ARE SUPPOSE TO HAVE A VISIT FROM MIKE'S REGULAR NURSE WHO WE THOUGHT WAS TERESA.  TURNS OUT SHE ONLY DID HIS REGISTRATION WITH RECOMMENDATIONS.  I KNEW A CASE WORKER WAS COMING OVER TODAY AT 2PM, BUT HAD NO IDEA THAT HIS REGULAR NURSE (SORRY-I DID NOT GET HER NAME), WOULD BE COMING OVER TOO.  I WENT OVER THE RULES OF ALLOWING HOSPICE TO TAKE CARE OF MIKE.  NO MENTION OF HIS BONE CANCER, AND NO MENTION OF HOSPICE.  THAT'S WHEN THE PROBLEM BEGAN.  SHE INSISTED THAT THEY ALL MUST IDENTIFY THEMSELVES TO THE PATIENT AS HOSPICE WORKERS, AND WEAR THERE NAME TAGS.  I EXPLAINED THAT THE ONLY REASON I HAD AGREED TO HAVING HOSPICE COME AND HELP WAS BECAUSE THEY AGREED NOT TO DO THOSE THINGS AROUND MIKE.  AFTER A LONG CONVERSATION, I TOLD HER THAT IF THAT IS THE CASE, I WOULD JUST KEEP ON TAKING CARE OF MIKE BY MYSELF 24/7 AS I HAVE BEEN DOING.  THERE IS NO WAY I AM GOING TO LET ON TO HIM THAT HE IS DYING PERIOD.  EVEN IN GREAT PAIN, HE IS HAPPY AND JOKING WITH ME-I WILL NOT ALLOW ANY ONE TO TAKE THAT AWAY FROM HIM.  HOSPICE SAID THEY WILL HAVE TO CALL ME BACK, WHICH AT THIS POINT I DON'T REALLY CARE ONE WAY OR THE OTHER.  MIKE DID SLEEP WELL LAST NIGHT, AND IS STILL IN BED.  HE WATCHED SOME FOOTBALL, BUT WAS NOT INTO IT AS IN TIMES PAST.  IF HE DOES NOT SEE ME FOR A MINUTE HE YELLS FOR ME.  "WHERE ARE YOU MOM"?  I THINK HE JUST DOES NOT WANT TO BE ALONE, AND I AM WITH HIM 99% OF THE TIME.  I WILL GO PUT SOME NEW PATCHES ON HIM TODAY WHEN HE GETS UP, AND HOPEFULLY THEY WILL HELP WITH HIS PAIN.  IF NOT I MAY NEED TO SEE HIS PCP AND SEE ABOUT GETTING HIM SOMETHING A LITTLE STRONGER.  WELL, HOPE YOU WEEK END WAS GREAT FUN-MIKE IS GETTING  UP SO I NEED TO GO SEE WHAT HE NEEDS FOR ME TO HELP HIM.  TILL TOMORROW-JUST ME